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Intro to Child Life Final (uiowa)
traumatic experience - Refers to an experience that is emotionally painful, distressing, or shocking (Can include things such as traffic accidents, abuse and neglect, peer or family suicide, dog bite, severe burns, natural disaster, or witnessing a serious or violent crime) shock, confusion, disbelief, anger, blame, sadness, helplessness - What are 7 responses that are normal for parents/caregivers when a traumatic experience happens (to their child) shock, denial, confusion, anger/blame, regression, interrupted sleep, physical complaints, withdrawal, distractibility, separation anxiety, stranger anxiety, violent play themes, flashbacks, avoidance, worry about dying, school avoidance, guilt, sadness or suicidal thoughts - What are 17 responses that are common in siblings when a traumatic event happens to their sibling? re-telling story with multiple versions; story not indicative of injury; unable to account for whereabouts of family during injury, gut feeling - What are 4 red flags that the grief or situation has gone beyond normal reactions for a child advocation - Contact a social worker or physician, expressing concerns, observing parent-child interactions and observing parent-sibling interactions are all steps a CLS needs to take when trying to do what for the patient/family severity, personal resources, social resources - What are 3 major variables when it comes to families in crisis? empathetic - What type of approach should a CLS use in order to identify feelings, restate and clarify responses of family members, listen quietly, and validate a family's loss giving parents choices, access to resources, memory making - What are 3 common family interventions that a CCLS may use when doing interventions for sudden death of a child (or any intervention)? request sibling support, opportunities for control and expression, encourage routines, educate, validate feelings - What are 5 common family supports that a CLS might do? newborn to 3 - What age group's understanding of death is characterized by not comprehending death, aware of constant buzz around house, and aware of parent's sadness newborn to 3 -
What age group's interventions around death is characterized by maintaining routines but allowing flexibility, choosing familiar and supportive caregivers, assigning a person of support for any memorial services, acknowledging all feelings, and giving extra hugs and attention 3-5 - What age group's understanding of death is characterized by seeing death as temporary and reversible, may feel ambivalent, magical thinking may lead to them assuming responsibility for the death 3-5 - What age group's interventions around death is characterized by reinforce that when people are sad they cry and crying is natural, read stories, provide materials for child to use arty as an expressive activity, encourage dialogue, expect misbehavior, and offer guided play with themes of death 6-9 - What age group's understanding of death is characterized by beginning to understand the concept, feels it happens to other people, may be superstitious about death, uncomfortable in expressing feelings, and worry that other important people may die. Encourage exploration of feelings by asking the child to answer their own question. 6-9 - What age group's interventions around death is characterized by listening to see what kind of information the child is seeing, increase physical activity while role-modeling stress reducing behaviors, work on identifying more sophisticated feelings, encourage creative outlets for feelings 9-12 - What age group's understanding of death is characterized by accepting death as final, having personal fear of death, maybe morbidly interested in skeletons or gruesome details of violent deaths. Allow for spiritual development and probe for thoughts and feelings 9-12 - What age group's interventions around death is characterized by encouraging creative expression of feelings, exploring support groups and peer-to-peer connections, establishing family traditions and memorial, and incorporating children into rituals, not just at time of death, but on important anniversaries too. adolescents - What age group's understanding of death is characterized by having an adult concept of death, and deals with loss based on experience and developmental factors, experiences thrill of recklessness, focuses on present, is developing strong philosophical views, and questions the existence of an afterlife. treat them like an adult and role model adult behaviors. adolescents - What age group's interventions around death is characterized by allowing informed participation, encourage peer support, suggest individual and group expressions of grief, support group advocacy for causes, recommend creative outlets
false - (True/False) Sibling bereavement is not a life-long process that requires ongoing integration, because many siblings are able to go on and be unaffected by the loss of their sibling survivor guilt - What is a common feeling of relatives of a child who dies? They ask why they should go on living in old age, and why a younger child should die hospice - Which type of care reaffirms the right of every person and family to fully participate in the final stage of life, Includes physical, social, psychological, and spiritual support for the child or family palliative - Which type of care is a broad philosophy of total, compassionate care that meets the physical, social, psychological, and spiritual needs to those involved with care when there is no cure. Focus son pain and symptom management with the possibility of death. legacy building - making a hand or foot print, creating a collage or memory box, planting a tree in memory, writing a story, or creating a family activity that becomes tradition are all examples of what type of intervention a CLS can provide to a family with a dying child pediatric palliative care - What program at UIHC is for children with serious or life threatening health conditions. The focus is to help ease pain and suffering, enhance quality of life for patient and family. False - (True/False) Palliative care cannot be provided at the same time as treatment and care. both - Pediatric Palliative Care at UIHC is designed tom serve patients that are being treated at the hospital as (inpatient/outpatient/both) multi-disciplinary - Pediatric Palliative Care is provided by what type of team. Consists of doctors, nurses, social worker, child life specialists, chaplains, etc. False - (True/False) Pediatric Palliative Care is only available to the child and their family at the time of diagnosis care coordination, discharge planning, education, referrals - What are 4 common goals of the Pediatric Palliative Care Team medical social worker -
The general role of which professional is characterized by evaluation and assessment, emotional support, providing community resources and programs, crisis intervention, education of staff, referrals for mental health counseling, advanced directives, discharge and post hospital care needs, and advocation social worker in palliative care - The role of which professional is characterized by addressing concrete needs, addressing understanding of prognosis and realistic outcomes, arranging care conferences, "rush wishes," hospice referrals, and arranging family requests family stressors - Within palliative care, siblings, marital discord, grandparents and other family/friends with differing opinions are all examples of what type of stressors increase - When a child is sick they will usually (increase/decrease) the number of barriers or stress. On the flip side, the family may drawn upon strengths and resources siblings - Within palliative care, which group of people will often experience emotional responses, behavioral issues, developmental considerations, and will often benefit greatly from child life language barriers, mental abilities/education, communication, denial - What are 4 common things that may interfere with the level of understanding about prognosis in terms of palliative care? emotional - For families during palliative care, they may experience fear of losing their child, losing support system, change in life focus, loss of control, etc. These are all examples of ______ issues work - For families during palliative care, they may experience no longer being able to keep their job, not getting time off, and needing to keep insurance. These are all examples of _____ issues financial - For families during palliative care, they may experience prior problems in this area, and the hospital in general is expensive and can exacerbate these issues. These are examples of _______ barriers I-POST - What document is often filled out while preparing for the death of a child that allows a DNR is 911 is called at home or outside of the hospital. 6 months - Hospice care of often how long at the maximum? true -
attractive materials, adequate space - According to Thompson, what 2 things contribute to adolescent gatherings and impromptu play sessions 1:15 - What is the average CLS:patient ratio? 25 - How many square feet per patient is recommended within playrooms infants - Which age group experience the world through senses, watching, listening, and feeling. A consideration/guideline for playrooms for this group. toddlers and preschoolers - Which age group is walking, moving, and playing on the floor. They learn through curiosity and exploring. A consideration/guideline for playrooms for this group. school age - Which age group is more social, groups, organized play - spend more time devoted to a project or an activity. A consideration/guideline for playrooms for this group. adolescents - Which age group should their play space be separate. Peer group is important, play to "lounge" and congregate. A consideration/guideline for playrooms for this group. clinical - Which type of patient/caregiver relationship is characterized by limited personal emotional involvement, and technical care is provided. Usually short in duration. therapeutic - Which type of patient/caregiver relationship is characterized by being the most common type formed in healthcare. Reflects the values of the institution while respecting the patient and family values. It is short to average in duration. connected - Which type of patient/caregiver relationship is characterized by being seen as people first, trust and commitment are complete and deep, professional goes the extra mile on the patient's behalf, patient seeks professional's advice/opinion, professional is source of support, and the experience changes as a result of their relationship. Self-disclosure is high, but it is still professional and has those boundaries. over-involved - Which type of patient/caregiver relationship is characterized by the professional being a complete confidant, the relationship continuing beyond the professional's work hours, and the professional becoming territorial boundary violation - What is it called when a relationship begins to meet the professional's need for love, acceptance, and meaningful relationships
boundaries - ______ serve to help people take care of themselves and prevent abuses rainbow framework - What is the decision-making model that includes institution/department philosophy and policies, desired patient/found outcome goals, stage of caregiver-patient relationship, needs interests and right so other patients, families and professionals, and the caregiver's personal philosophy and values 1 - Which principle in the CL Code of Ethics: hold paramount the welfare of children and families whom they serve 2 - Which principle in the CL Code of Ethics: maintain objectivity, integrity, and competence 3 - Which principle in the CL Code of Ethics: Serve all children and families regardless of differentiating factors 4 - Which principle in the CL Code of Ethics: Respect privacy and confidentiality 5 - Which principle in the CL Code of Ethics: Promote the profession of child life 6 - Which principle in the CL Code of Ethics: continually seek knowledge and skills to improve practice 7 - Which principle in the CL Code of Ethics: Use ethical practice in research 8 - Which principle in the CL Code of Ethics: make appropriate referrals 9 - Which principle in the CL Code of Ethics: Respect duties, competencies, and needs of their colleagues 10 - Which principle in the CL Code of Ethics: Use integrity to assess and amend and personal relationships (2 years following their professional role before a personal relationship should develop) 11 - Which CL Code of Ethics: Financial gain should never take precedence over the delivery of services
respect for persons (autonomy and protection), beneficence and nonmaleficence, justice, veracity, fidelity, informed consent, competence, confidentiality - what are the 8 core ethical principles from the Belmont Report in 1979 establish the facts, perspective taking, recognizing content, proposing action - What are the 4 steps in the Step Wise Approach establishing the facts - Which stage within the step wise approach consists of asking what is the problem, gathering medical facts and issues and getting any of the relevant facts (social, community, religious, economic, impact of illness) perspective taking - Which stage within the step wise approach consists of asking who are the moral stakeholders moral stakeholders - Within the step wise approach, the individual patient, patient's community, relevant healthcare providers, and the institution are all examples of ______ ________ recognizing the content - Which stage within the step wise approach consists of assessing the relevant ethical principles: institutional guidelines; laws; local, state, federal legal considerations; and available resources that relate to the solution proposing action - Which stage within the step wise approach consists of choosing a plan of action, assessing who makes the final decision, and decide how it will be communicated Giving information - While ______ ________ keep in mind 5 things: recognize transitions of adults to adulthood; respect - honest and consistent information; beneficence and non-maleficence; developmentally appropriate information; professional code of ethics harm principle - A principle that identifies the threshold for state action; when there is evidence that a parent's actions or decisions will harm the child; society has an obligation to ensure basic needs of most vulnerable populations are met True - (True/False) If there is medical neglect of a child, the state can assume temporary custody for a child Beneficence and Nonmaleficence - Recognizing family centered care; symptom distress management; prioritizing symptom distress in care; and palliative sedation are all examples of which core ethical principle osteogenesis imperfecta (type 1) -
Mildest form, characterized by bone fractures during childhood and adolescence that result from minor trauma. AKA brittle bone disease. Caused but an autosomal dominant trait osteogenesis imperfecta (type 1) - Treatments for this disease are care of fractures; dental procedures; PT and OT; diphosphonate medicines, rodding, and assistive devices Osteogenesis Imperfecta (type 1) - Some interventions specified for this disease for a 13-year-old were music therapy, religion, quote cards, playlists, decorating arts and crafts chronic renal failure - Loss of normal kidney function, damage of kidneys. This progresses over time and can lead to permanent failure of the organ and often you need a transplant chronic renal failure - Common treatments for this disease are dialysis and kidney transplants. chronic renal failure - Some specified interventions for this disease (15 years old) was a kickball tournament - "kicking dialysis" ALL (acute lymphoblastic leukemia) - Cancer that affects white blood cells that reproduce in the bone marrow. There are too many immature white blood cells ALL (acute lymphoblastic leukemia) - This disease is treated with chemotherapy, radiation, and stem cell transplants. ALL - Specified interventions for this disease (3 years old) were medical play, group activities, distractions, and "blood soup" showing the sick vs healthy blood aplastic anemia - Disease in which the body stops producing enough blood cells. Can be inherited or acquired. Aplastic anemia - Common treatments for this disease are immunosuppressive therapies, bone marrow transplants, antibiotic therapies, blood transfusions, and medication to stimulate bone marrow production aplastic anemia - Specified interventions for this disease (10 years old) were sibling sleepover/support, puppet show, and other medical play scoliosis - A sideways curvature of the spine; classified according to age.
Duchenne muscular dystrophy - Treatments for this disease include regular echocardiograms, respiratory function exams, and assisted ventilation machines. Duchenne muscular dystrophy - Specified interventions for this disease (15 years old) include a "teen fight club" for a peer support group. Emphasizing therapeutic activities as well as likes and interest of the patients/people in the support group. sickle cell anemia - A hereditary disease in which the blood cells take on a half-moon shape. Hemoglobins is atypical and there is a lack of red blood cells. sickle cell anemia - Treatments for this disease include blood transfusions, bone marrow transplants. sickle cell anemia - Specified interventions for this disease (7 years old) include books with the theme of the disorder, sibling support, support groups, IV bag decorating birth-1 - When does Frued's oral psychosexual stage occur? 1-3 - When does Frued's anal psychosexual stage occur? 3-6 - When does Frued's phallic psychosexual stage occur? 6-11 - When does Frued's latency psychosexual stage occur? 11+ (adolescence) - When does Frued's genital psychosexual stage occur? birth-1 - When does Erickson's trust vs mistrust stage occur? trust vs mistrust - Erikson's first stage during the first year of life, infants learn to trust when they are cared for in a consistent warm manner. Learning that the provider of comfort is reliable, consistent, and predictable 1-3 - When does Erickson's autonomy vs shame and doubt stage occur? autonomy vs shame and doubt - Erikson's stage in which a toddler learns to exercise will and to do things independently. Learning to exercise independence and freedom of choice along with self- control
When does Erickson's initiative vs guilt stage occur? initiative vs guilt - Erikson's third stage in which the child finds independence in planning, playing and other activities. Planning and executing a task for the sake of actively doing it 6-12 - When does Erickson's industry vs inferiority stage occur? industry vs inferiority - Erikson's stage when the child learns to be productive; Developing as a worker and producer 12-18 - When does Erickson's identity vs role confusion stage occur? identity vs role confusion - Erikson's stage during which teenagers and young adults search for and become their true selves. Evolving a sense of self that is reliable and consistent, both for oneself and for others 20s - When does Erickson's intimacy and solidarity vs isolation stage occur? intimacy and solidarity vs isolation - One of Erickson's stages: preparing for a commitment to affiliation with others and developing the ethical strength to abide by such commitments late 20s and 50s - When does Erickson's generativity vs self-absorption stage occur? generativity vs self-absorption - Finding a way to support in the establishment and guidance of the next generation 50s+ - When does Erickson's integrity vs despair stage occur? integrity vs despair - Integrating the earlier stages into an acceptance of oneself and a sense of fulfillment rather than looking back in regret at what might have been birth-2 - When does Piaget's sensorimotor stage occur? 2-7 - When does Piaget's preoperational stage occur? 7-11 -
What age group is characterized by balance between becoming independent and having boundaries preschool - What age group is characterized by working on learning new skills and becoming self-reliant without being made to feel as if they are doing something wrong. Very egocentric school age - What age group is characterized by feeling the need to accomplish a task and be successful without feeling not good enough or considered insignificant adolescents - What age group is characterized by struggling to find who they re and what they are to become stress - In a medical or biological context, this is a physical, mental, or emotional factor that causes bodily or mental tension. This can lead to compassion fatigue and burnout if not treated compassion satisfaction -
- Motivation to keep helping people shaped in part by the satisfaction of service the greater good. May be happiness with what one can do to make then world in which one lives a reflection of what one things it should be. empathy - When you "feel with" the person that is in distress and imagine how they experience their world sympathy - "feeling for" the person in distress, but remaining distant compassion fatigue - Several symptoms including hopelessness, a decrease in experiences of pleasure, constant stress or anxiety, sleeplessness or nightmares and a pervasive negative attitude do not - Compassion fatigue escalates when caregiver (do/do not) attend to their own emotional needs burnout - To cause to fail, wear out, or become exhausted especially from overwork or overuse burnout - Emotional exhaustion, depersonalization, lack of personal accomplishment, callousness, feeling overly sad or depressed, apathy, excessive bitterness and anger, alcohol/drug use, negative outlook on work, and personal distress are all examples of symptoms of _______
getting more pleasure out of life; being more engaged in what you do; finding ways of making your life more meaningful - What are the 3 components of happiness according to Seligman preparation stage, making of resolutions, keeping your resolutions - What are the 3 stages within the happiness project? a book - What is The Happiness Project (type of media/event/etc.)
