Eleanor Doyle, Patient Gerard Doyle, Caregiver Morristown, NJ, Exams of Voice

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Eleanor Doyle, Patient

Gerard Doyle, Caregiver

Morristown, NJ

SA NJ

Diagnosed by local neurologist in June,

February, 2016 Diagnosis Confirmed at

Mayo Clinic

Symptoms started significantly before

then

SA NJ

Lack Of Symptoms No Tremor No Serious Autonomic Symptoms: No big fluctuations in blood pressure no fainting or lightheadedness SA NJ

Medications – currently none Medications Tried – no effect on symptoms Sinemet (carbidopa-levodopa) Amantadine Azilect Nuepro SA NJ

Mindset at Diagnosis

• Expected more treatment options to

control symptoms and the progression of

the disease (pharmaceuticals)

SA NJ

Mindset Change:

• Mayo Clinic confirmation that

Pharmaceuticals not available

• Acceptance of Disease SA NJ

Philosophy:

Hope and Acceptance

SA NJ

Final Recommendations:

• Exercise, Exercise, Exercise
• Consult Movement Disorders Specialist
• Consider Voice Therapy LSVT (Lee Silverman Voice Therapy) Breathing Exercises with EMST (Expiratory Muscle Strength Trainer)
• Regularly check for clinical trials at ClinicalTrials.gov
• Do all you can do while you can do it
• Prepare for being debilitated SA NJ