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Exploring Factitious Disorders: Munchausen Syndrome by Proxy and More, Lecture notes of Psychiatry

Insights into factitious disorders, specifically focusing on munchausen syndrome by proxy and its impact on individuals and their families. Discussions on clinical experiences, forensic implications, and real-life cases. It serves as a valuable resource for professionals seeking a deeper understanding of factitious disorders.

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The reader obtains a sense of how individuals engage
in deception and, more importantly, potential in-
sight into what the motivations are for these individ-
uals or how the condition often progresses. A draw-
back to this approach, however, is that the anecdotes
start to blend together and, as noted by Feldman and
Yates in the introduction, “these cases don’t make for
easy reading” (p 6) given their graphic (e.g., inten-
tionally injecting oneself with feces) and disturbing
nature (e.g., a parent intentionally adding salt to in-
fant formula or smothering a child to simulate
illness).
The book is broken down into 10 chapters. The
first chapter is an overview of the history of med-
ical deception and the development of the current
formulation of the condition. Subsequent chapters
are devoted to specific aspects or permutations of
the condition, such as chapters related to factitious
disorder by proxy (Chapter 2. Medical Abuse:
When Deception is Maltreatment), factitious dis-
order by internet (Chapter 8. Cyber-Deception
and Munchausen by Internet, e.g., reporting to have
an illness in blogs or patient-support websites), and
Munchausen by animal proxy (Chapter 10). The
book also includes a chapter about the impact of
erroneous diagnosis of factious disorder, as well as
what happens when an individual with a past history
of factitious disorder really does become ill (Chapter
9. Jumping to Conclusions: False Accusations).
Chapter 3, entitled Mental Masquerades, may be of
particular interest to forensic practitioners because
this chapter discusses individuals with factitious dis-
order who simulate having psychiatric conditions
rather than a more traditional somatic illness. This
chapter examines questions forensic experts have to
assess, such as the motivation for a faked claim of
illness (i.e., is an exaggerated or factitious presenta-
tion due to malingering, to assume the sick role, or
both).
Readers looking for an in-depth clinical study of
factitious disorder will find that this book meets their
needs. It is very good at conveying the clinical pathol-
ogy (e.g., actions taken, responses when discovered,
the ways in which individuals tried to avoid detec-
tion), significant elements of individual case histories
(e.g., important aspects of the person’s history lead-
ing to the behavior, what motivated the individual’s
behavior, and why it was hard to stop engaging in the
behavior), and long-term impact of the condition on
the individual’s life and the lives of others. Dying To
Be Ill is successful in humanizing those with the
condition.
For professionals looking for a deeper forensic
appreciation of factitious disorder, this book may
or may not serve their needs. Given that the book
consists primarily of anecdotal case reviews, there
are few data or scientific references for the reader
with a forensic focus to utilize. In addition, this
book is not designed to be a convenient reference
book. The chapters are often very long and dense.
Although Dr. Feldman discusses aspects of his fo-
rensic experience, many of the anecdotes seem to
be solely from his perspective with little to no
mention of their legal application (e.g., court case
citations, excerpts from judges’ rulings, how to
perform a forensic evaluation for someone with
the disorder). There was some discussion in Chap-
ter 7 (Conscience, Ethics, and the Law) regarding
how a clinician could avoid or respond to potential
legal entanglement when treating someone sus-
pected of having factitious disorder.
Overall, this book is well written, though it can be
dense and tedious at times. Dr. Feldman’s experience
and expertise as a clinician is clearly evident in this
work. For a clinician who is looking for a text that
provides a deeper understanding of factitious disor-
der and may allow examination of clinical experi-
ences in a new light, I highly recommend Dying To
Be Ill. For readers who may be more interested in
information on the disorder as it relates to forensic
work, this book, although informative, may not be
the ideal resource.
Ryan Hall, MD
Lake Mary, Florida
Disclosures of financial or other potential conflicts of interest: None.
DOI:10.29158/JAAPL.003903-19
The Act
Created and produced by Nick Antosca, Michelle Dean,
Britton Rizzio, Gregory Shephard, and Jan Peter
Meyboom; directed by Laure de Clermont-Tonnerre,
Adam Arkin, Christina Choe, Steven Piet, and Hannah
Fidell. Hulu. First aired March 20, 2019.
In this eight-episode dramatization of real events in-
volving Munchausen syndrome by proxy (MBP) and
matricide, viewers learn the story of Gypsy Rose
Books and Media
534 The Journal of the American Academy of Psychiatry and the Law
pf3

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The reader obtains a sense of how individuals engage in deception and, more importantly, potential in- sight into what the motivations are for these individ- uals or how the condition often progresses. A draw- back to this approach, however, is that the anecdotes start to blend together and, as noted by Feldman and Yates in the introduction, “these cases don’t make for easy reading” (p 6) given their graphic (e.g., inten- tionally injecting oneself with feces) and disturbing nature (e.g., a parent intentionally adding salt to in- fant formula or smothering a child to simulate illness). The book is broken down into 10 chapters. The first chapter is an overview of the history of med- ical deception and the development of the current formulation of the condition. Subsequent chapters are devoted to specific aspects or permutations of the condition, such as chapters related to factitious disorder by proxy (Chapter 2. Medical Abuse: When Deception is Maltreatment), factitious dis- order by internet (Chapter 8. Cyber-Deception and Munchausen by Internet, e.g., reporting to have an illness in blogs or patient-support websites), and Munchausen by animal proxy (Chapter 10). The book also includes a chapter about the impact of erroneous diagnosis of factious disorder, as well as what happens when an individual with a past history of factitious disorder really does become ill (Chapter

  1. Jumping to Conclusions: False Accusations). Chapter 3, entitled Mental Masquerades, may be of particular interest to forensic practitioners because this chapter discusses individuals with factitious dis- order who simulate having psychiatric conditions rather than a more traditional somatic illness. This chapter examines questions forensic experts have to assess, such as the motivation for a faked claim of illness (i.e., is an exaggerated or factitious presenta- tion due to malingering, to assume the sick role, or both). Readers looking for an in-depth clinical study of factitious disorder will find that this book meets their needs. It is very good at conveying the clinical pathol- ogy (e.g., actions taken, responses when discovered, the ways in which individuals tried to avoid detec- tion), significant elements of individual case histories (e.g., important aspects of the person’s history lead- ing to the behavior, what motivated the individual’s behavior, and why it was hard to stop engaging in the behavior), and long-term impact of the condition on the individual’s life and the lives of others. Dying To

Be Ill is successful in humanizing those with the condition. For professionals looking for a deeper forensic appreciation of factitious disorder, this book may or may not serve their needs. Given that the book consists primarily of anecdotal case reviews, there are few data or scientific references for the reader with a forensic focus to utilize. In addition, this book is not designed to be a convenient reference book. The chapters are often very long and dense. Although Dr. Feldman discusses aspects of his fo- rensic experience, many of the anecdotes seem to be solely from his perspective with little to no mention of their legal application (e.g., court case citations, excerpts from judges’ rulings, how to perform a forensic evaluation for someone with the disorder). There was some discussion in Chap- ter 7 (Conscience, Ethics, and the Law) regarding how a clinician could avoid or respond to potential legal entanglement when treating someone sus- pected of having factitious disorder. Overall, this book is well written, though it can be dense and tedious at times. Dr. Feldman’s experience and expertise as a clinician is clearly evident in this work. For a clinician who is looking for a text that provides a deeper understanding of factitious disor- der and may allow examination of clinical experi- ences in a new light, I highly recommend Dying To Be Ill. For readers who may be more interested in information on the disorder as it relates to forensic work, this book, although informative, may not be the ideal resource. Ryan Hall, MD Lake Mary, Florida Disclosures of financial or other potential conflicts of interest: None.

DOI:10.29158/JAAPL.003903-

The Act

Created and produced by Nick Antosca, Michelle Dean, Britton Rizzio, Gregory Shephard, and Jan Peter Meyboom; directed by Laure de Clermont-Tonnerre, Adam Arkin, Christina Choe, Steven Piet, and Hannah Fidell. Hulu. First aired March 20, 2019.

In this eight-episode dramatization of real events in- volving Munchausen syndrome by proxy (MBP) and matricide, viewers learn the story of Gypsy Rose

534 The Journal of the American Academy of Psychiatry and the Law

Blanchard (played by Joey King) through the rela- tionship with her mother, DeeDee Blanchard (por- trayed by Patricia Arquette). This story was sensa- tionalized in international news headlines in 2015 and affords an example of truth being stranger than fiction. It strains credulity even while watching the real events unfold: Gypsy Blanchard was confined to a wheelchair for most of her childhood, had her pa- rotid glands removed for excessive drooling, and had a percutaneous endoscopic gastrostomy (PEG) tube placed for feeding, when nothing was actually med- ically wrong with her. The series portrays how DeeDee and Gypsy Rose gained attention because of how sick young Gypsy Rose appeared. Gypsy and her family made multiple Make A Wish trips to Disney, and a home was built for them by Habitat for Humanity. Gypsy Rose’s mother (who may have also experienced abuse at the hands of her own mother) and the doctors and hos- pital staff all failed her. A recent systematic literature review of medical child abuse found that the perpe- trators are overwhelmingly mothers, and about one third of the time they had also been maltreated as children. 1 Professionals are often found to have a blind-spot in diagnosing medical child abuse. Gypsy Rose’s father, who lived several states away and was not involved in the abuse, consistent with the litera- ture, was unaware of the abuse and unaware of spe- cific details of Gypsy Rose’s alleged illness. 2 On June 14, 2015, DeeDee Blanchard was found dead by multiple stab wounds in her Habitat for Humanity home. Gypsy Rose, whom neighbors had thought was confined to a wheelchair, was gone and feared dead. The Act series dramatizes Gypsy Rose’s longing to be a normal teenager, including putting on makeup and going out with boys, with her efforts thwarted by her mother who lied about her birthdate and kept Gypsy Rose four years younger than her actual age. Instead of dating boys, Gypsy Rose has her food blended and given through a PEG tube in her stomach, which she does not need. She is wheeled by her mother in a wheelchair although she can ac- tually walk. She must sleep with a CPAP machine that her mother often monitors by sleeping in the same bed as the teenage Gypsy Rose. DeeDee also perpetrated physical abuse and tied Gypsy Rose to the bed with scarves as punishment. Despite the heavy-handed monitoring by her mother, Gypsy Rose finds a way to set up a Facebook account and use an online dating website. Through

this online dating site, she meets Nicholas Godejohn (played by Calum Worthy), who claimed to have multiple personalities, and starts a secret romance with him which includes BDSM (bondage domi- nance sadism masochism) fantasy. She tried to ar- range a chance meeting with her mother and Nich- olas at a movie theater, but DeeDee does not play along and keeps Gypsy Rose away from him.

Related Works The novel and television series, Sharp Objects , also addressed MBP, also known as factitious disorder imposed on another and medical child abuse. 3 De- spite Sharp Objects being fictional, that portrayal seemed even more realistic than the dramatization of Gypsy Rose’s life as it was dramatized in The Act because Gypsy Rose’s abuse was so extreme. MBP is a difficult concept for professionals, much less juries, to grasp, because it includes hidden abuse perpetrated by an apparently loving other (most of- ten the victim’s mother). Sharp Objects and The Act may be very helpful in drawing it into juror’s con- sciousness. Another work that may be helpful in this way is Sickened , an excellent and heartbreaking first- person memoir of Julie Gregory, who suffered med- ical child abuse victimization at the hands of her mother. 4 Like The Act , Sickened demonstrates an ex- treme case of MBP, including the mother demand- ing invasive procedures such as open heart surgery and keeping the child out of school to drive her miles away to find a doctor who would perform the most invasive procedure. Unthinkably, her mother also failed to take her to a doctor right away when she was complaining of pain from a visibly swollen, broken wrist after a fall on the playground. Unlike Gypsy Rose, who found no opportunity to speak out against her mother, when Ms. Gregory attempted to tell adults the truth of her horrific victimization, she was not believed even by her peers at school. These stories should serve as important reminders to psychiatrists that while the diagnosis of MBP or factitious disorder imposed on another may be thought-provoking psychological phenomena, the child who is abused should be the focus more than the mother’s psychopathology. It is not uncommon that those children who kill a parent have been vic- timized by abuse. While we traditionally conceptu- alize this abuse as physical, as this series demon- strates, it can also be medical child abuse.

Volume 47, Number 4, 2019 535